When children with kidney disease reach adulthood, their care needs change in more ways than one. The shift from pediatric to adult nephrology is a major milestone that requires careful coordination, emotional support and medical expertise in both pediatric and adult nephrology.
Dr. Angelina Dixon, a dual board-certified pediatric and adult nephrologist, guide patients through this critical transition. She works with young adults and their families at the Pediatric-to-Adult Nephrology Clinic, helping them move confidently from pediatric specialists to adult care.
Why is the pediatric to adult nephrology transition so important?
“The age range when pediatric patients transition to adulthood is the highest chance for kidney transplant graft loss,” Dr. Dixon explains. That means this period is one of the most medically fragile times in a young kidney patient’s life.
Kidney transplants, dialysis management or long-term kidney disease follow-up all require consistent, coordinated care. But when patients move from one clinic to another, that continuity can break down. Add in life changes like moving to college, starting a first job or living independently, and the risk of missed appointments or medication lapses can increase.
Dr. Dixon says it’s about more than just transferring medical records. “These patients are often going through several big transitions at once. They’re leaving home, building independence and learning to manage their own health, sometimes for the first time,” she shares.
How does CU Medicine help young adults adjust to adult kidney care?
The Pediatric-to-Adult Nephrology Clinic focuses on gradual independence. Dr. Dixon and her team work with both patients and parents to set small, achievable goals.
“We start by encouraging young adults to take responsibility for one part of their care, maybe remembering when to refill a medication or schedule their own appointment,” Dr. Dixon says.
The team also ensures young adults understand their kidney condition, treatment plan and what to expect as they move forward. Education is key. The more a patient understands their health, the better prepared they are to advocate for themselves in adulthood.
What should families look for in an adult nephrologist?
Dr. Dixon’s advice is simple but powerful. She shares, “find a provider you trust with all of your questions, kidney-related or not.”
The relationship matters. Young adults who feel comfortable communicating opening with their nephrologist are more likely to stay consistent with care and reach out before small issues become big problems.
Additionally, clinics like the Pediatric-to-Adult Nephrology Clinic bring together experts who understand both the unique conditions children face and the kidney diseases that are more common in adults.
How can families support a smooth transition for pediatric kidney patients?
If your child is approaching adulthood and living with kidney disease or a transplant, planning early helps. Here are a few steps:
· Start talking about transition early. Begin conversations in the mid-teens about what adult care will look like.
· Encourage independence gradually. Give young adults small responsibilities for managing their care.
· Keep communication open. Parents and providers should work together to ensure patients feel supported, not overwhelmed.
· Choose the right clinic. Look for programs like the Pediatric-to-Adult Nephrology Clinic that specialize in this transition.
Where can patients and families find support for pediatric to adult nephrology care?
The Pediatric-to-Adult Nephrology Clinic at CU Anschutz provides specialized care for adolescents and young adults navigating this critical phase. With experts like Dr. Angelina Dixon, patients get a continuity of care that blends compassion, education and long-term kidney management.
