Compassionate Care for Hypermobility Spectrum Disorder, Ehlers-Danlos Syndromes and Related Conditions in Cherry Creek

Living with a hypermobility spectrum disorder (HSD), Ehlers-Danlos Syndrome (EDS), or a heritable connective tissue disorder can be challenging. Symptoms may affect many parts of the body, change over time, and require care from multiple specialists. Finding answers and coordinating that care can feel overwhelming.

Adult Comprehensive Hypermobility Care at CU Medicine Internal Medicine–Cherry Creek provides diagnostic evaluations, care coordination, and ongoing support for people with complex hypermobility-related conditions. Whether you are seeking an initial evaluation, have previously received a diagnosis of HSD or EDS, or need help managing symptoms, we work with you to develop a personalized plan that reflects your needs and goals.

We aim to serve as a medical home for hypermobility-related concerns, working alongside your primary care provider and specialists to help you navigate the health care system and manage your health over time.

What is Hypermobility?

Joint hypermobility means that one or more joints can move beyond the range of motion typically expected. Many people have hypermobile joints that don’t require any treatment.

For others, hypermobility may be associated with pain, joint instability, injuries, or other symptoms that affect daily life. Symptomatic hypermobility can occur on its own or as part of a condition such as a HSD, EDS or other rare forms of hereditary connective tissue disease.

What is Hypermobility Spectrum Disorder?

HSD is a condition in which multiple joints can move beyond an expected range of motion, often resulting in chronic pain, recurrent joint dislocations and frequent injuries. Many people with HSD also experience symptoms beyond their joints, such as chronic fatigue, digestive symptoms, allergy symptoms, headaches, and a racing heartbeat or lightheadedness when standing. Symptoms and their impact can vary widely from person to person. Often, many of these symptoms have been present since childhood.

What Are the Ehlers-Danlos Syndromes?

The Ehlers-Danlos Syndromes are a group of heritable connective tissue diseases. Connective tissue provides support and structure throughout the body, including in the joints, skin, blood vessels, and internal organs. Different types of EDS have distinguishing features and can vary in severity. Depending on the type, symptoms may include joint hypermobility and instability, pain, skin changes, poor wound healing and tissue fragility.

Hypermobile EDS, often called “hEDS”, is the most common type.

What Causes EDS?

Many types of EDS are associated with identifiable changes in genes that affect connective tissue. The genetic cause or causes of hypermobile EDS have not yet been identified.

Hypermobile EDS is diagnosed through a clinical evaluation using established criteria, rather than a genetic test. For other types of EDS or related heritable connective tissue disorders, genetic evaluation or testing may be appropriate.

How Are HSD and EDS Evaluated and Managed?

There is no single treatment plan that works for everyone with HSD or EDS. We begin by listening to your concerns and learning about your medical history, symptoms, and goals. Your evaluation may include a physical examination, review of previous testing, and consideration of other conditions that could be contributing to your symptoms.

Together, we develop a care plan tailored to your needs. Depending on your symptoms and circumstances, your plan may include:

• Strategies to manage pain, joint instability, fatigue, and other symptoms.
• Referrals for physical therapy or other rehabilitation services.
• Evaluation and management of associated conditions.
• Coordination with your primary care provider and specialists.
• Ongoing follow-up to assess your progress and adjust your plan as your needs change.

Our goal is to help you better understand your health, improve function and quality of life, and feel supported in your care.

Why Choose Adult Comprehensive Hypermobility Care?

Care Centered on You

We recognize that every patient’s experience is different. We listen to your concerns, consider the full picture of your health, and work with you to identify priorities and create a plan that supports your goals.

Coordinated, Long-Term Support

Hypermobility-related conditions can involve multiple body systems and health care providers. We help patients navigate their care, manage symptoms and associated conditions over time, and connect with specialists with expertise in hypermobility related conditions when appropriate.

Depending on your needs, we may coordinate with specialists in areas such as genetics, cardiology, gastroenterology, allergy and immunology, neurology, pain medicine, palliative care and hematology.

Partnership With Your Primary Care Provider

We work alongside your primary care provider to support communication and continuity across your care team. Together, we aim to develop a clear, personalized plan for managing your hypermobility-related concerns.

Supporting the Transition to Adult Care

Moving from pediatric to adult health care can be especially challenging for young people with complex medical needs. We are working to establish a transition pathway that supports continuity of care as patients move into adult services.

Schedule an Appointment

Whether you are seeking an evaluation or looking for support with an established diagnosis, our team is here to help. Call 720-516-0792 to learn more about Adult Comprehensive Hypermobility Care and to schedule an appointment. 

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